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    Ethical Considerations of a National Database for Children with Medical Complexity

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    Author
    Moore, Quianta; Blagg, Tara; Todd, Hannah
    Date
    2017
    Description
    The Advancing Care for Exceptional Kids Act proposes a national database that would serve as a centralized source of information on children with medically complex conditions. The aim is to improve treatment and care coordination. The authors of this brief argue, however, that the database could put children and their families at risk of discrimination by making their health information public, and therefore accessible to employers and health insurers.
    Citation
    Moore, Quianta, Blagg, Tara and Todd, Hannah. "Ethical Considerations of a National Database for Children with Medical Complexity." Issue Brief, no. 05.23.17 (2017) James A. Baker III Institute for Public Policy of Rice University: https://www.bakerinstitute.org/research/ethical-considerations-national-database-children-medical-complexity/.
    Type
    Issue brief
    Publisher
    James A. Baker III Institute for Public Policy of Rice University
    Citable link to this page
    https://hdl.handle.net/1911/97762
    Rights
    This material may be quoted or reproduced without prior permission, provided appropriate credit is given to the author and Rice Universityメs Baker Institute for Public Policy.
    Link to related resources
    https://www.bakerinstitute.org/research/ethical-considerations-national-database-children-medical-complexity/
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    • Center for Health and Biosciences [207]

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    Home | FAQ | Contact Us | Privacy Notice | Accessibility Statement
    Managed by the Digital Scholarship Services at Fondren Library, Rice University
    Physical Address: 6100 Main Street, Houston, Texas 77005
    Mailing Address: MS-44, P.O.BOX 1892, Houston, Texas 77251-1892
    Site Map